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1/30/17

Back Off Grid In A Modern Prefab House! With Mid-Century Modern Scores.

It is so good to be back at the passive solar off grid prefab home.
Sooooo. What's it like to be gone unexpectedly, nearly three weeks in winter when you live off grid?
Welllllllllll, as you know, the modern prefab has a cook stove usually humming in frigid temps to the point where we're often overheated thanks to the energy efficiency of the house.

But it is winter and we've been gone. GONE. NOOOOOOone here. From what I can tell, the temperatures averaged in the 40s during the day, then 20s at night. And the off grid house sat for weeks. In gray, dreary weather.

We arrived late morning, and thanks to the energy efficiency of the SIP and passive solar design, the off grid prefab house was a cool 59, but y'all: IT WAS 59 after frost on the field and ice on the water troughs.
I fired up the cookstove.

Starting with a cool house, like any home whether it be on- or off-grid, it takes awhile to get cozy but we were never uncomfortable- by night you could feel the heat warming all rooms of the house. But it still wasn't toasty. There's a lotta square footage to heat with one tiny firebox! But I am typing in long sleeves and jeans and I'm fine.

Being back, you'd think after nearly three weeks of city living we'd miss the amenities, but it is so comforting to be home after all those doctor, hospital, and ER visits.

The first thing I did was start the cook stove. Then, once it was going, I threw out hay and feed and fell into a deep sleep. All those hospital visits and stress had taken its toll.  Late afternoon I awoke, and still exhausted, stumbled into the field, and we rejoined the herd.
Zena is happy to be brushed
but is looking for her Pip 1...

Then I headed over to the wood shed and stacked wood (wow, the wind gusts must have been AMAZING! Our pasture cams showed us how insanely windy it was, gusts of 20+ knots, but it was wild to see firewood fallen!), then headed inside. It was so good to be home.
Here's where we get to the mid-century modern part.
First, let me emphasize how much I *abhore* shopping.

We unexpectedly spent almost three weeks in the city, in and out of hospitals, ERs, and doctors' appointments with a scared child diagnosed with alpha gal whose body is reacting to everything.
Oh look it's our FIFTH ER visit in this time.

The City House, which I rarely mention as it is neither off grid nor a modern prefab, is where Handsome Husband can safely rest his head when not telecommuting from the off grid prefab, and where we stay when seeing friends.  It came about after realizing that instead of throwing (so much!) money away on DC rent to keep Handsome Husband safe during work days when he could not telecommute, instead of dangerously driving from DC through black ice and deer to the off grid prefab, we could, for about the same amount of money, pay a nearby city mortgage, thus not throwing money away. Now he gets on a train to DC, opens up his laptop, and *boom* is putting in work hours while the train safely commutes him to his face-to-face meetings.

That City House, that we thought we would then sell in a year, went from "let's toss the IKEA furniture from the DC apartment in to it and call it a day; the mattresses can sit on the floor who cares about beds, we'll probably sell this house soon..."
to
"...and now the kids are entering their teen years and want to see hordes of other kids so we need to come here often..."
to
"...we can not go home, because we have been to the ER five times in one week. We are here... indefinitely."

It was time to move in a little more to The City House.
When we weren't with doctors, we were SO cooped up! But Pip 2 had little energy for activity. So I would take Pip 2 on quick 20 minute excursions to thrift stores, antique malls... it served to get us out of the house, get her mind off things, and hopefully, if we were lucky, we might find one or two scores...

I always have a list in the back of my mind of "stuff to look for" when antiquing.
Here is what is currently on my list:
- fondue plates because: fondue! I love fondue!
- flatware, cool, modern to replace the flatware we've always had (that can be set aside for the Pips for *their* apartments) because it's functional but boring
- a dresser for Pip 2
- a more grown up bed for Pip 2

Looking for a dresser, when Pip 2 was feeling more stable we would try to distract her with short scouting trips to local thrift and antique stores. (Remember: we're *just* looking for a dresser.)
And look what I found: a rug that looks JUST LIKE our beloved dog! EEEEP!
"Wait, WHAT?!?"
Hmmmmmmmmmm...

Look what I found! Cool bronze and rosewood flatware by Jean-Claude! Fantastic! Recycled to our home for less than I would pay for an ugly pattern set of 12 at Walmart! Mid-century AND modern! And I have been looking for flatware for months but couldn't find anything "just right" that was new! I love that it's *perfect* -and- reused, and for the same price if I bought something I hated!
FanTASTIC.

LOOK WHAT I FOUND: Quite possibly my BIGGEST thrift find EVER:
A perfect condition mid-century modern hutch- the rare and beautiful Mainline by Hooker Furniture, produced between 1950-60s, Danish-inspired USA-made, selling for thousands and thousands of dollars when you can ever find them, for... $150.

Oh yes I did.
I hate shopping but when I do,
collectors hate me.

Earlier this year, Handsome Husband found a vintage white wicker bedroom set for $200 to get our mattresses off the floor in the city house! Fantastic recycling! But... white wicker is so not me... but it IS Pip 2! So we moved the wicker into Pip 2's room. She was thrilled!

Wouldn't it be cool to have a mid-century modern headboard with a little storage? I have been looking and looking for one for years. Oh, wait: we *DID* find a Merton Gershun for Martinsville's Dania series totally rare walnut and black formica mid-century modern headboard! Hmmmmm. I hate shopping but... why yes, thank you...
Note top drawers to hide stuff so you don't look messy.


Oh, and *another* Mainline piece (what are the CHANCES?), a gorgeous dresser...
Ok this is a terrible picture so I found a better picture on the internet:

And, yes, about that dresser for Pip 2 which is why we made all these excursions in the first place...
We found a dresser.
BUT IT'S NOT AN ORDINARY DRESSER. It's a desk repurposed into a computer table and drawers!
"This is a winsome mid-century modern secretary desk by Egon Ostergaard.  The desk hails from Sweden and is constructed from teak.  The roll-top features bookmatched graining in a diamond pattern.  The front has a brass keyhole and lock with its original key.  The interior has an assortment of shelves, cubbies and drawers with an extendable work surface.  The bottom boasts three drawers with elaborate graining and inset teak pulls.  The top drawer has a brass keyhole and lock with a second original key.  Teak stretchers and tapered legs complete the Scandinavian design."

Through all the panic and medical mystery over the past weeks, I really want to thank our friends. One friend took care of all the animals for almost three weeks on no notice! Almost three Wednesdays ago, we thought we were rushing to the allergist  a child who couldn't eat and was reacting to not just alpha gal triggers but *everything.* We thought we might spend one night in the city and be back the next day. We never came home. We are really, REALLY grateful for everyone who stepped in to help, even if to stop by the City House for a glass of wine to lift our spirits without overtiring the child.

Other friends sent a gift I want to mention because it's so cool- if you like art and science then you will enjoy NeoLucida:

Thanks to the W's, Pip 2 was able to be distracted with the NeoLucida, hence it was an invaluable gift. Pip 2 *loves* to draw and this is a great tool where she can combine accuracy with creativity. I can't wait to have my own turn on it!
She's tracing a little ceramic owl
that she then added a body and dressed.
Accurate -and- creative!
So. We are back at the modern off grid prefab house.
 It was great to be reunited with the equines and fowl.
"GUYS! The little girls is bck and SHE'S GOT THE BRUSHES!!!"
We are still settling in and awaiting labwork.
But we're home.

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1/23/17

Alpha Gal And Histamine Intolerance Mast Cell Mastocytosis Linked? Mystery Reactions For An Alpha Gal Child

Green building and off grid modern prefab house blogging this week have been superseded by the health issues of our child, who was just diagnosed with Alpha Gal
In the ER eating the only thing she could
eat: organic boiled potatoes.
Yet 24 hours later, she couldn't
eat potatoes.


In the past week we have been to the ER four times, mystified more doctors than you can imagine, have taken more bloodwork and tests than you ever want to know, but are finally (finally!) starting to find answers. 

I am devoting this week's post to Alpha Gal (also referred to here as alpha-gal, as people use both) and high histamine intolerance in the hopes that it might help others. If you are suffering from Alpha Gal there is a great Alpha Gal group I recommend highly, much of the following alpha gal information was sourced from there.

Alpha Gal
What is Alpha Gal and how do you get it? Most medical professionals look at me blankly when I tell them our child was diagnosed as alpha gal, but as I begin to explain, they quickly recall reading articles about "that tick borne allergy to meat..."
Are you a medical professional? This is a must-read on alpha gal.

We love the outdoors!
And somehow encountered alpha gal.



With Alpha Gal, your body becomes extremely allergic to carbohydrates found in mammals and dairy, often reacting to the point of anaphylactic shock.  Unlike other food allergies, reactions are usually not immediate but delayed, often by hours, so people may not take it seriously when finally reacting vs. "I ate a peanut, my throat is closing, call an ambulance!" food allergy reactions.

In order to provide proper nutrition with dairy and beef / pork / lamb etc. removed, it makes sense to eat healthy foods like beans, spinach, other high protein vegetables and seafood, to embrace gut-enabling fermented foods, and soy. However, our child was reacting left and right to foods not within the Alpha Gal umbrella! Her face flushed and spots appeared over her joints and near her mouth to things that did NOT make sense.

I understood to avoid dairy and mammals. But why was she reacting to homemade bread? Fish?

Looking back, I believe it was a combination of Alpha Gal triggers that were "hidden" in food and medicine, paired with another reaction: high histamine intolerance / a mast cell issue. 

Reacting AGAIN, terrified AGAIN,
back to the ER... AGAIN.

The healthy foods you gravitate towards in order to be nutritious while avoiding Alpha Gal triggers, ironically are high histamine foods. So for a subset of sufferers, there IS a tie in with Alpha Gal to histamine reactions, too.

Here's what I did. In trying to decipher my daughter's mystery reactions, I decided to put foods into categories.  I knew she had Alpha Gal. But what of the mystery reactions? So I wrote down what you can't eat, by categories, and then to what foods she reacted, to see if it somehow matched up. The list of foods was so long (basically: everything) that after two weeks of fear and frustration it is much easier to write down what (kinda) worked. And even then she reacted, just not strongly enough to rush to the ER:

I also think these mystery issues started much further back, then came to a head- she was diagnosed with asthma three years ago, lyme disease two years ago, cat scratch fever a year ago... and I wonder if it's all related. Until now (and even now, testing) she has no food allergies. She is allergic to mold and sulfites, and now, alpha gal triggers.

Back in the ER and what does grandma
show up with? A purse full of
McDONALDS to feed this
organic, non-processed farm family.
True story I can not make that up!
Poor grandma.
She tried.

Check it out: beware hidden triggers in food and medicine!
*NO*: Do not eat! ALPHA GAL TRIGGER:
-NO mammals / dairy: (here's a good animal-avoidance list of hidden triggers)
-flu vaccine: She had a flu shot in December.
"The sugars found in meat from mammals is also in toothpaste, lotions, sunscreens, antibiotics and in some cases, vaccines. The flu shot, for instance, has gelatin in it, which comes from mammals.
...
'We have to order a special flu vaccine,' Powell explained. 'I just had to get permission from the state to have Will immune from having to take a booster immunization shot because it had a pork product in it.'”
-NON VEGAN sugar, flour (has cattle char to bleach)
-GELATIN in *medicine,* desserts is bovine!
-GLYCERIN (= animal usually)
-Tricalcium phosphate can be bone ash
-Natural flavorings = often beef broth
-Whey
-Most soy contains casein = cow
-Lactose, glucose, any -ose (also: heparin = porcine)
-Carrageen: inflammation
- magnesium stearate can be bovine
- vitamin D3 - unless they say fish-based, it's mammal
- mono and diglycerides can be bovine...
- Sodium casinate = dairy
-Almost all prednisone contains dairy. Ask for compounding pharmacy to make liquid
-Avoid cats
-Calcium/Calcium lactate = dairy
-Poultry sausage often has animal casings!
- Water filters! Often the charcoal is bone char!
-A lot of people who have alpha gal then react to any **sugar** not just meat carbohydrates
-Beware "plumping" of meat with injected additives, often animal based
-Asthma? CHECK YOUR MEDICATIONS. Pip 2 takes Asmanex. I don't know WHY it took me this long to research it (maybe because we've been in crisis these past weeks after being diagnosed?) but yes, Asmanex contains dairy, the milk protein Anhydrous Lactose.
-School children: Check school supplies- many adhesives / art supplies are made with animal byproducts, including crayons.

For some, alpha gal brings on high histamine intolerance. So...

HIGH HISTAMINE FOODS: NO!!!
No foods that are...
See those knees? Bright red on joints
was another sign of reacting.

Fermented, aged (cheese, leftovers), pickled, smoked, or contain vinegar, shellfish/crustaceans, beans (RED & SOY), nuts, chickpeas, peanuts, citrus, pineapple, wheat germ, black tea, benzoate, sulphites, nitrites, glutamate, food dyes, ketchup, eggplant, spinach, pumpkin, mushrooms, canned veggies, egg white, cocoa, cinnamon, chili powder, curry, nutmeg, paprika... complete lists herehere and a handy dandy food chart here.

I also wonder how many people finding themselves with high histamine issues are also asthmatic. Something to research. Is it a true alpha gal subset -or- a reaction *to* the asthma medications?

MAST CELL / MASTOCYTOSIS:
Overlapping with high histamine food avoidance but even more stringent: a complete list of foods can be found, here. Think: whole foods, but without dairy, gluten, GMO's, soy or corn and low sugar only from fruit.
NO yeast (is that why she suddenly can not tolerate bread?)

SUCCESS: (note: everything organic)
Looking at her reactions, she was definitely overflowing in her histamine bucket! A lot of items that were "safe" on histamine lists she still reacted to and I found they were often in the "no" on mastocytosis lists- like potatoes, bread...
She was able to eat sweet potatoes and chicken cooked 2 hrs without skin, at first. Later it didn't do so well. Less successful but tolerable were slightly unripe bananas, plantains that I sliced thin and baked ("Just like pita chips!"), apple sauce with *nothing* added like sugar or whatnot, cooked cabbage and watermelon. I was successful in baking plantains and zucchini (both very thin) in a sheet with a touch of unrefined coconut oil to make "chips." Homemade kale chips did well. Northern beans (cooked well) did well. If you are reacting oddly to things that do not make sense, check out that Mastocytosis Diet, we found a lot of the odd things she was reacting to were on that list. Also note rice and corn are inflammatory, and a lot of people have issues with gluten.

ALPHA GAL RECOMMENDATIONS:
Vegan probiotics and prebiotic is the big key to our gi not giving us too many issues...
Soak in a bathtub w/ baking soda and Epsom salts- it will draw out a lot of toxins-for 2x a week because it really helps.. add some lavender oil to the bath....... lavender is used for fighting allergens too... but only if you feel comfortable using it.
For all ok and not ok foods go here.)

Mast cell / Mastocytosis / Histamine are all linked.
Even organic flour is not created equal.
Make sure it is vegan to avoid cattle char!

"As with cancer cells, mast cells do not die, disappear, or cease to function, on their own. Unlike cancer cells, mast cells are normally good cells. But it's a case of having too much of a good thing. That can be just as damaging and life threatening as a malignancy. Every time a patient encounters a trigger, they risk their mast cells mutliplying in number. Too many mast cells will increase their suffering and eventually could potentially shorten their life span. So it is vitally important for patients to avoid triggering mast cell degranulation to both lessen their suffering, and preserve their quality and length of life."

Regarding chicken: we initially cooked it in a pan (with no oil, nothing, just a little water so it wouldn't burn) but she eventually started reacting to it... a friend said her son can only eat chicken if it is boiled two hours, without skin. I tried it and it made a difference. Also note that organic chicken is important because otherwise meat these days is "plumped" with solutions to add taste and juiciness that are made of solutions that are alpha-gal triggers!

Antihistamines are important for treatment of both alpha-gal and mastocytosis. HOWEVER after a few days on Zyrtec (we were breaking the capsules with a knife and telling her to lick the cutting board so that she wouldn't ingest the capsule to avoid reacting to gelatin in case it was animal-based) she was so depressed... so they switched her to Allegra. The UNC doctors recommend Zyrtec and Claritin. By now I had been steeped in medical research and knew to look at EVERY ingredient so when magnesium stearate caught my eye...  that too can be bovine! I called Allegra and it is vegetable based. But Alpha Gal sufferers warn others to regularly call the medicine companies to make sure product ingredients have not changed. Both Zyrtec and Claratin have alpha gal and high histamine possible triggers, make sure you call them as their inactive ingredients can change.

Alpha-gal sufferers also note that they can be affected by shampoos, soaps, etc. even the water they drink (well vs. tap) so do note that as well.

If you are suffering from high histamine / chest / breathing reactions, ask for a Peak Flow Meter. This has helped our child immensley as she endures panic attacks when her body starts reacting- she can check and document her peak flow daily so when she worries her body is reacting she can then check her peak flow meter and tell herself, "You're OKAY." You can get them from your allergist and even at local pharmacies.

BRAT diet approach vs. Changing Things Up
At first, scared, we tried to just feed her a food that would "work." Rice seemed fine, so I joked, "Maybe you'll just have to eat rice a few days until your body stops reacting!" So it was rice for breakfast, rice for lunch, rice for... and then, she started reacting. Tightness on her throat, stomach pains, splotches...

I tried potatoes. Seemed fine a day, then reactions. Kidney beans, same thing.
So then I decided that instead of feeding her one safe food, to switch it up so that no safe food was repeated within 24 hours.

From Healing Histamine:
We're *all* reseraching this! 
"An increasing number of doctors I have spoken with believe that strangling the supply of dietary histamine may cause the body to release more to make up for the shortfall. Why? Because histamine is an integral part of the immune system response, helps wake us up in the morning, gets digestion going, plays a role in our metabolism and is a neurotransmitter affecting serotonin, dopamine and GABA (and therefore our mood) [1]. You can read about histamine’s role in depression here and in schizophrenia here.
... 
Just because you react to a food today, doesn’t mean you will tomorrow, next week or forever. One of the biggest  mistakes I made was not constantly challenging my body to accept a healthy food back into the rotation. In cases of moderate to severe reactions it is essential to work with a medical practitioner in doing so. Things change, the body heals and the inflammation bucket empties. Conversely, tolerating a food now is not guarantee you won’t react if you eat double the amount, or eat it later that day, next week or next year. As outlined in the aforementioned WHO report, histamine reactions are dose dependent, so if you’re dealing with pre-existing inflammation caused by prior histamine food ingestion you may have a reaction one day, but not on another when you have not been consuming high histamine foods or dealing with excess inflammation. 
There are many histamine/mast cell triggers other than food. Stress hormones can cause mast cells to release histamine thereby causing reactions. "
Food intolerance guide
for histamine foods.



There is a lot of sense in this.
However, we might have switched it up too much.
We are back to starting with two "safe" (for now) foods- sweet potatoes and chicken boiled without skin over 2 hours. But each day I add a well cooked (to break down protein) "safe" food like carrots or brocolli or (uncooked, slightly unripe) banana to keep it mixed up.

Are you traveling? Must eat out? Here is a list of restaurants who are more sensitive to those who suffer with food allergies.

Today I am grateful for homeschool. If we were in "real" school, due to a 2+ week horrible cold that hit our family last month, the weather, holidays, and now, food allergy emergencies, Pip 2 at this point would have easily missed a month of school. Instead, because she continues to do school when she is well enough and wants to each day, she is still, even with all this ruckus, two weeks ahead of even our "regular" annual education timeline to finish our school year by April! In homeschool we can also better monitor her and more safely feed her, as often it takes me hours to fix her a meal, because what worked yesterday might not be working today, and because each food takes so long to cook, then try.

I am grateful for homeschool because she can do school wherever, whenever.
Here, she is feeling better, it's 8p.m., and I know she's feeling well because instead of listlessly watching a movie she wants to do... math.

Funny story: (because we ALL need a funny story after this right?)
As we were in the city to see doctors, with multiple panicky Emergency Room visits, and just generally freak out, we were also trying to keep her mind off things. What a great idea to go to our favorite art museum with a favorite pal! What a great idea to see the Jasper Johns Edvard Munch exhibit! So off we went.

Maybe it wasn't the best exhibit for her to see.
Kinda depressing. Probably not what a
kid who is having panic attacks and
depression over her ailment should
probably see, not exactly uplifting...

Oh look! It's The Scream!
Nothing like The Scream to lift her mood!


Here's a picture of dead bodies and skeletons feeding
a tree that's feeding a pregnant lady.



Oh look. We just left the ER and she is reading...

Oh, look. All these people DYING. Nice!

Syphillis.

Two weeks later, her body seems (knock on wood) to be finally, slowly stabilizing, as we stick to low histamine foods and completely avoid alpha gal triggers.
There are doctor appointments and more test results coming in.

We hope to return this week to our normal life off grid, hugging equines and enjoying the modern prefab house.

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1/16/17

Energy Efficient Net Zero Off Grid Prefab House Goes Down To -2 And... Alpha Gal.

Surrounded by snow, the energy efficient net zero off grid prefab house nestled in as the temperatures plummeted to -2. The cook stove was kept going, keeping the prefab house heated as the extreme weather plummeted...

In the morning, as usual in winter, I ran the HRV for an hour. That's when I figured out a mystery that had been puzzling me since a polar vortex a few years ago: what was that weird water pattern on the plywood that mysteriously showed up one day in an area that (like everywhere) is (always) secure and dry? I had watched that area for years and never seen condensation since. Aside from that one time it has always been dry as a bone...

Notes on Fresh Air Exchange when it is seriously, frigid, below zero cold in any house, prefab or traditionally-built, off grid or on: 
Our fresh air exchange system, a Honeywell HRV, is so critical during seasons where we don't have windows open and the breeze flowing as our modern prefab house has such a tight envelope, has shown an issue that anyone, in any home, needs to know about if they are using our thinking of using an ERV / HRV.

The wonderful thing about these conditioning pipes is that in winter cold air is pumped in but does not bring down the temperature of the off grid prefab because instead of immediately mixing with the indoor air, they travel through pipes which allows the air to acclimate to the indoor air temperature. So by the time that fresh air mixes with the old, it's not freezing cold but comfortable!

HOWEVER. When the outdoor temperatures are extreme, in this case, near zero, and only when it is this dire, ice forms on the outside of the pipe! Look closely here:
Above that northwest window-
do you see the vent for fresh air exchange?
Now, rare for our area, we are in BELOW ZERO temperatures.
I'm running the HRV while making dinner...
come in to the bedroom to grab something
and notice: WHOA! What is that ice there on the pipe?!?
And then the mystery stain suddenly makes sense.
FYI don't freak out like I did- that black is not mold but waterproof tape.

This is a very rare occurrence in this climate HOWEVER it will be something we address because we can not take any chance of any moisture or mold, EVER, being so allergic.
So now we know, and now you know.

Simple to solve, but something not good if you ignore
Adjusting the humidity setting on the HRV should do the trick but I am also eyeing how to protect the wall for future dire temperature situations, a good proactive thing you / your contractor should consider. Our contractor made sure to wrap everything in contact with waterproof insulating tape (seen in the photo as black), I will see what Artic climate contractors do to see if there's anything else we might consider.

Sooooooooooo... it plummeted to -2.
Dear Mom: We are still not dead even though the weather is dire:
Cozy & comfortable in the prefab house...

"I want you to keep your bedroom door open tonight- I want to make sure heat is evenly distributed throughout the house since it's going down to -2. JUST IN CASE the wood stove goes out, I want y'all to be toasty!"
Pip 1: "I actually like my door closed because I *don't* want it so hot. I sleep so much better in a cool room and it's always so hot in this house!"

I mentally note that we live off grid heated only with a tiny firebox yet are always hot in this energy efficient house...
"Ok, I get that..."
Pip 1: "PLUS in a zombie apocalypse they can't open the door and I can listen out for their ragged breathing. Thankfully I have my cannons and guns and always wear ear protection so they can't sneak up on me when I'm unarmed."
Um.

So there we were, happily ensconced in snow in a toasty off grid house. There was nothing to do but have fun! Except... Pip 2 was off. She hadn't been feeling well since having a slice of pecan pie over the holidays. We had taken her to the allergist and were awaiting test results. In the meantime (of course!) we avoided nuts. But...

"Momma, I hurt and I can't breathe..." She was reacting to... BREAD. Through the snow, black ice, and deer, Handsome Husband and Pip 2 rushed to the hospital... only to return, hours later, still with no answers, scared, starving, reactive.

Pip 2's allergy test results are coming in, and they show she is not allergic to X, Y, Z. But her body is reacting so.
Imagine your child's face flushed and patchy
and medical people telling you she's not allergic to anything...

Y'all. This is NOT IN HER HEAD.

Finally the results for alpha gal came in and... she tested positive.

What does this mean? No dairy nor mammalian meat. What is alpha gal? Have a lissen.


She's trying to be cheery but it's hard.

Even then, the list of what she "can" or "can not" eat doesn't make sense- she is reacting to apples, lettuce, beans, potatoes, yet does not test as allergic. How do you explain the huge splotches on her face? Why does she say her heart flutters after?

I frantically began to research. I think histamine intolerance / mast cell disorder are a second thing she is undergoing, and it involves foods we turned to in order to avoid alpha-gal reactions and gain proper nutrition from elimination of alpha gal items.

In the past week we have been to the ER three times with our daughter but now I feel like I am discovering ALPHA GAL -AND- histamine intolerance or mast cell disorder.

Next week's post is dedicated to Alpha Gal and the subset of those reacting to histamine / mast cell disorder.

In the meantime, she is living on kidney beans, and we are on the horn to medical professionals with our research.
Please pray for us, wish us luck, send us karma.  She is tired, we are tired, she is starving, we are scared and frustrated.
Only SHE would go outside, make a
snow heart, and bring it in to calm me
as I'm frantically getting directions
to the allergist as she is reacting...
Down the rabbit hole we go.

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